What follows are excerpts from a couple of my facebook conversations:
From what i understand from reading bits online for the past year or so my collection of
symptoms when looked at from a vascular angle make a lot more sense. I never went on to
the immune modifying alternatives cos i couldn't see the sense/worth/benefit of
purposely making a weakened body work less well by stamping on its immune system
(involving multiple injections/week) for a little-better-than-placebo effect.
I felt more comfortable dampening down the body's inflammatory ‘mopping up’ response to
the damage my immune system’s wreaking on it/myself through diet, exercise, early-ish
nights and all the other things that have helped me become the really dull person I am
today!
For the past few years i've been wondering whether i'd made a big mistake by not getting
on the modifiers early on.
'parently a vascular surgeon/interventional radiologist can go into a vein in your thigh
and make their way through your body (they've been doing similar for some heart disease
since the late 70s) til they arrive at the jugular veins and then get some balloons and
we can all have a party! (apparently you have to bring your own jelly and icecream to
the procedure which can be done in less than half a day)
no need for knocking out even!
This theory has been interesting me since last august and I get scanned in a month or so
on friday august 13th. It could all be a big conspiracy by financially struggling
vascular surgeons & interventional radiologists who've seen the size of the ms treatment
pie and want their own slice as well as the neurologists... I don't understand why the
immune aspect is put forward/accepted by neurologists when most of the immune system is
a couple of feet away from the brain (in the gut).I’m probably being overly simplistic
here. hey ho, the joys of a photographic training!
if the theory's correct the impaired bloodflow causes damage to the brain (think oxbow
lakes in geography: slow moving liquid leaves its mark). When they first 'discovered' ms
in the 1850s Charcol(?) et al commented on iron depositions being present in MS brains
and veins running through the centre of each area of damage - this avenue of research
got dropped in the 1930s in favour of the immune model because a neurologist researcher
managed to create something like MS in mice - EAE which, for the past 80 years has
become the starting point for all theories about ms. I knew learning about oxbow lakes
in 2ary school would serve me well - just never was quite sure how! I’m working this out
as i go along, hugely helped by a group one incredible lady has setup on facebook
http://www.facebook.com/settings/?tab=privacy§ion=custom&h=342db15ae56ea33cfb9c8de5c
a29ee02#!/pages/CCSVI-in-Multiple-Sclerosis/110796282297?v=app_2347471856 which been
getting information out to a rapidly growing number of people. I think there were less
than 500 members when i joined in January and now there are over 15,000. It may not
provide as many chuckles as LOLcatz but some of the articles that Joan has posted
provide a lot of food for thought. Her husband has MS and after hearing about Zamboni’s
vascular research (which started with his wife who has MS has been tirelessly spreading
the word) her husband composes film scores and i can’t believe there isn’t someone
already writing a script for this amazing story. Even if it does turn out to be
overenthusiasm it’ll make great movie!The NY Times article
http://well.blogs.nytimes.com/2010/06/28/an-unproven-treatment-for-multiple-sclerosis/
around the beginning of July helped enormously
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